2017-11-17
2014-12-10
2014-10-01
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Please
share this leaflet! We are looking for any information about genetic
defect called trisomy of chromosome 9 and 11.
2014-07-17
About us
Bois dentelle - group of people with ultra-rare diseases and SWAN is a society, which mostly consists of people, who has so called status SWAN - Syndrome Without a Name. This society also includes people, who are known as probably only diagnosed medical cases in Poland (though they may have theirs “copy” somewhere in the world).
Why we chose this name?
Name of the group comes from kind of the tree, which is most rare in nature. If you have luck, you can find it amongst plant life of the Mauritius Island (Indian Ocean). Bois dentelle… There are probably only two of those trees in natural setting, in the whole world! Scientists are trying to save them and increase their number, which is almost impossible. So, we have decided that situation of this trees is similar to situation of people, who belong to our group - ultra rare, difficulties in scientific research, fight for life…
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